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Innovations in Alzheimer’s Care

January 5, 2011 by Honey Leave a Comment

A December 31, 2010 New York Times story by Pam Belluck titled “Giving Alzheimer’s Patients Their Own Way, Even Chocolate,” describes recent innovations in long-term care. In particular, the article describes at length what is being done for Alzheimer’s patients at the Beatitudes campus in Phoenix, AZ.

It seems Beatitudes is going out of its way not to be a conventional nursing facility. Strict institutional schedules deliberately yield to individual needs. For example, meals are served at all hours. Patients can eat whatever they want and follow whatever schedule makes them happiest.

From the article:

“Dementia patients at Beatitudes are allowed practically anything that brings comfort, even an alcoholic ‘nip at night’,” said Tena Alonzo, director of research. “Whatever your vice is, we’re your folks,” she continued.

All this makes great sense to me.

Being cared for at Beatitudes costs money. Lots of it. Yet this article doesn’t mention anywhere how much Alzheimer’s care at Beatitudes costs. This is the first thing I wanted to know when I read the article, and I’m sure I’m not the only reader wanting this information. The media often seems to sweep such useful information under the carpet, which continues to amaze me.

It’s a continuing mystery to me how and why the public, often aided and abetted by the media, suffers a “disconnect” when it comes to dealing with the need for responsible long-term care planning that can fund wonderful options like Beatitudes.

Filed Under: Denial, Helpful Information About LTC, Information About LTC Tagged With: Beautitudes, New York Times, Pam Belluck

Dear Abby tackles long-term care issues

January 2, 2011 by Honey Leave a Comment

In her December 19, 2011 column, quoted completely, below, Dear Abby published a letter about someone who is 99.9% likely to NOT own long-term care insurance (LTCi). I say this not just because statistically, only 10% of Americans in optimum age range and income brackets do (see my blog on the Urban Institute report). If the lady described below owned LTCi, she might have been less hesitant to access the long-term care she sadly, and very evidently needs. LTCi would have pumped money with which care could be paid for. I informally observe that when insurance pays, people get the right kind of care earlier and more often.

The situation below is very sad, and largely avoidable when long-term care planning has been done. Unfortunately, we see similar situations very often.

 “DEAR ABBY: I have an elderly neighbor I have been friends with for many years. Over the past several years she has had numerous medical problems. I have done everything I can to be her friend. I do things around the house, bring her meals, whatever I can. She has no family and only one other friend besides me.

She is depressed and stays in bed most of the day, which contributes to her aches and pains. I keep telling her she needs to get up and walk or her pain will get worse. It has reached the point where she’s so nasty about everything that I don’t even want to talk to her.

I understand that she’s scared and feels beaten up. I try to talk about things that are noncontroversial — happy things. It doesn’t work. She turns everything into an argument. I don’t know what to do. I hate to ignore her, but it’s really taking a toll on me. Am I a fair-weather friend? — TRYING TO BE A GOOD NEIGHBOR IN MASSACHUSETTS

DEAR GOOD NEIGHBOR: No, you are a caring friend. Your elderly neighbor is ill, and she may be becoming demented. Because she is no longer able to care for herself or her home, contact the nearest hospital or senior center and ask to speak with a social worker on staff. The woman you describe may need more help than you can give her, from people with the training to do it.”

Filed Under: Denial, Helpful Information About LTC, I'll Just Self-Insure Tagged With: Dear Abby, Honey Leveen, Long Term Care insurance, LTC Insurance, Urban Institute

A Sad, and All Too Common Story

December 18, 2010 by Honey Leave a Comment

I recently made a long-term care (LTC) insurance presentation to a 62 year old woman, still working full-time.  She was very eager to meet with me and learn about how LTC works and how much it costs.  Before my visit, she explained that she smokes and is so small she’s almost below desirable height and weight guidelines, because she is a caregiver. She went on at length, emptying her heart to me before we even met. I think she knew I understood what she was going through. I think she is in a state where she is continuously overwhelmed by her circumstances, to the point where they pre-occupy her subconsciously. I’m sure she is effective at work, but I feel her load is so heavy and overwhelming that it must cast a gray cloud over everything she does.

She described her constant state of concern about her husband, because he suffers from Alzheimer’s Disease.  Evidently, he is still able to stay at home, unsupervised, during the day, while she works. I believe she realizes this may not be the optimal alternative for him, and that he may fall into harm’s way. When she returns home at night, and during weekends, her life is consumed by her caregiving responsibilities. To hear her tell it, she has no social life whatsoever. She is extremely aware of the fact that although her husband is presently able to remain home during the day unsupervised, she knows its only a matter of time before this will no longer be possible. She also expressed fear of when that day might come. Hers is a one day at a time existence. She cannot make any plans. Indeed, she commented that all the plans they had made, have changed. I think she’s like a bird in a cage. I have tremendous empathy for her.

Who would understand better than this woman, the urgent need for her to buy LTC insurance?

During my presentation, we talked about the fact that if LTC had been in place for her husband, their economic and social situation would be entirely different. For example, there would be a caregiver at home, to offer her respite. She would not be worrying about how to pay for care. She would not be carrying the same large burden, and nagging fear of the worst. We talked about LTC being necessary so that her son would not be caught in the same dilemma if she winds up needing any type of care. We talked about the dignity of having choices, and not having to depend entirely on loved ones, that LTC insurance can provide.

I am blogging about this because of the disturbing outcome of this story. Unfortunately, I have encountered similar circumstances and outcomes over and over, in my 19 years as a long-term care insurance specialist. Perhaps no one understands the importance of LTC insurance better than this lady.  Often, people in these situations get paralyzed, like a deer caught in headlights. They are unable to see the forest for the trees. They are panicked. They are frozen. They are unable to come to decisions. They feel they cannot afford to spend any money. I showed this lady some very low LTC premiums, but she was unable to go forward with an application.

This makes me so sad.

Filed Under: Denial, Helpful Information About LTC, Information About LTC, Long-Term Care Awareness Month Tagged With: Alzheimers Disease, dementia, Long Term Care insurance, LTC, LTC costs

Margaret’s Story

September 8, 2009 by Honey Leave a Comment

I wish to offer debts of gratitude to Margaret M for having the courage to share her story with us. Unfortunately, similar situations  happen far more often than they should, mostly because people don’t want to plan. Margaret and I ardently hope that by sharing her story, others will be able to avoid similar circumstances.  The following is a true story, and not a paid endorsement.

“Dear Honey:

About 18 years ago, we received a mail solicitation for long-term care insurance. My husband said he thought it sounded like a good idea. We responded and made an appointment with an agent who would show us coverage.

Three days before our appointment, my husband suffered a mini-stroke and became uninsurable. He continued to have mini-strokes. His condition deteriorated. He was eventually diagnosed with Alzheimer’s disease.

My husband was an avid jogger. One day he went jogging and couldn’t find his way home. At that point, he wanted to move to our retirement home in Louisiana, about 4 ½ hours away. We felt he could do some of his favorite activities there, and would be safer because he wouldn’t have to leave our 54 acres. He had a caregiver. We were able to save some money because the cost of care is lower there.

That was in February, 2000. I was working full-time, largely to keep us both covered with health insurance. Every weekend, I’d commute back and forth to Louisiana from Houston.

My husband’s condition continued to deteriorate. He began to hallucinate and became violent, making it impossible for him to remain in our home with a caregiver.   In the Spring of 2006, we moved him into a nursing home back in Houston. By the time he passed away on Thanksgiving Day of 2006, he’d lost 60 pounds and was painfully thin and physically debilitated.

This whole ordeal lasted about ten years. Alzheimers and similar debilitating diseases cause tremendous emotional stress for the patient and caregiver.    We went through pretty much our entire $650,000 retirement savings paying for his care.  The stress of this  financial burden greatly exacerbates the pain and devastation of losing your loved one.

People just can’t imagine something like this ever happening to them. They can’t fathom how expensive the cost of care can be. I am sad and concerned about this. This is why I want my story told. I’d like to prevent other families from experiencing the same type of hardship we had. Our lives would have turned out so differently if we’d known about long-term care insurance just a little bit sooner.   I am so glad I own long term care insurance, so that our children will never have to worry about providing care for me, should it be needed in the future.” ~ Margaret M | Houston, TX

Filed Under: Denial, Helpful Information About LTC, I'll Just Self-Insure, Information About LTC Tagged With: Alzheimers Disease, LTC, LTC Insurance

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Email: honey@honeyleveen.com

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Honey Leveen, LUTCF, CLTC, LTCP
“The Queen, by Self-Proclamation, of Long-Term Care Insurance (LTCi)”
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Phone: 713-988-4671
Fax: 281-829-7177

Email: honey@honeyleveen.com

Email: honey@honeyleveen.com

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