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Bringing Joy to Dementia

July 17, 2019 by Honey Leveen Leave a Comment

Bringing Joy to DementiaDr. Patricia (Tia) Powell has a new book, “Dementia Reimagined“. In this refreshing piece of work, Dr. Powell, director of the Montefiore Einstein Center for Bioethics, shares her experiences with dementia as both caregiver to her mother and physician to her aging patients. Abundantly qualified and credentialed, she finds herself in the unique position to discuss the possibility of joy, dignity and hope while dealing with dementia.

Terry Gross, host of the NPR podcast Fresh Air, had an excellent conversation with Powell. They delve into Powell’s experiences and her outlook for the future of treating dementia patients. You can listen to the podcast yourself (or read the transcript) here.

“Figuring out how to communicate better, how to listen better to people with dementia while they can speak and even potentially afterward to figure out, what could I do? What actually would be helpful, not from my point of view but from yours? What actually would make things better?”

In this poignant interview, they discuss the various tolls that dementia takes on the person. It’s not just memory loss. It can also include depression or anxiety. It’s a disease of the brain, so it also involves loss of “executive function”. That means that making the simplest decisions or even organizing the natural flow of tasks can be daunting. And frustrating.

Managing Dementia With Joy

Dr. Powell views caregiving and dementia through both a medical and a personal lens. My relationship with dementia patients is as their insurance agent, helping them manage their long term care. It’s reassuring that Dr. Powell and I share perspectives on how to optimize the patient’s experience.

During her interview, Dr. Powell offers sound advice on how families can make the most out of a dementia diagnosis. She often uses music as a real comfort to many of her patients. For some reason, the memories we hold from certain songs manages to hold up over time, even in the throes of dementia.

ProTip: Many professionals recommend making a playlist of your favorite songs NOW, while you can think of those chestnuts that light up your heart and bring a smile to your face. They’ll be such a source of joy for you in your later years.

She also suggests other hobbies like gardening might hold the key to reconnecting the patient to activities they once enjoyed.

Powell also shares her thoughts on why keeping the dementia patient at home is not always the best choice. Followers of this blog know that I’ve written about this often over the years. It’s always affirming to hear the experts supporting my views!

At about the 30-minute mark of the podcast, Dr. Powell does a great job explaining what Medicare and Medicaid pays for, and why neither will pay for the type of long term care a dementia patient requires. If you’re like most Americans, her description will clear up many confusing questions you might have.

Manage the Fear with Planning

Dr. Powell stated people are more fearful of getting Alzheimer’s disease and other dementias than they are about getting cancer. I have to agree with this.

While there is no cure for dementia, we can take steps to plan for the best possible care if and when we need it. Make your playlist. Tell your children about your love of gardening or old movies. And click here to receive your free, no-obligation quote for long term care insurance.

Filed Under: Age related brain loss, Age related cognitive impairment, Denial, Elephant in the Room Tagged With: dementia, Dementia Reimagined, Long-Term Care Planning, ltc planning, Patricia Tia Powell MD

Your Wealth Won’t Protect You From Fraud and Financial Abuse

July 15, 2019 by Honey Leveen Leave a Comment

Wealth Won't Protect You From Fraud and Financial AbuseMany people have a fond place in their hearts for the art of Peter Max. A symbol of the hippie counterculture in the 1960s and 1970s, Max’s work holds prized locations on the walls of collectors around the world. Now in his later years, Peter Max has fallen victim to dementia. His wealth nor his notoriety can protect him from the financially abusive situation he has landed in.

The courts are still sorting out the details of this twisted tale. Including lots of finger-pointing between his second wife, Mary Max (who died from suicide in June 2019), his son, Adam, and his daughter, Libra, along with the various lawyers, agents and guardians who were supposedly protecting Peter Max and his valuable business.

His Wealth Declined With His Health

The current state of Max’s condition is revealed in this article in the New York Times (May 28, 2019). The writer describes his lavish lifestyle and the popularity of his artwork. She also reports on the financial losses of his business and the questionable source of it’s latest recovery.

In 2012, Max’s health had rapidly declined and the dementia had taken a firm hold. Max was unable to work and finances suffered. The business, ALP Inc., defaulted on $5.4 million in bank loans. In exchange for half of his ownership in ALP, Max hired Lawrence Moscowitz, an insurance agent, to help breathe new life into the failing company. Moscowitz, in turn, appealed to Max’s estranged son, Adam, to actively manage the daily operations.

The revived business plan includes the hiring of “an expanding cast of artists to mimic Mr. Max’s more commercial work. In the acrylic-spattered space above the Chinese restaurant, according to seven people who have seen it, there were as many as 18 assistant painters…”

In six years, ALP transitioned from near-bankruptcy to generating over $93 million in sales. This is largely due to the aggressive exploitation of Peter Max’s reputation and his artistic style being sold as originals to unsuspecting consumers.

Where Was His Plan?

Peter Max’s business is now out of his hands, both artistically and financially. His family dynamics have deteriorated with the fight for guardianship between his wife and his children. Much of this could have been avoided by some thoughtful, advance planning and documentation. He could easily have provided for a formal succession plan. He could have selected his own guardian to look out for his interests in his later years.

Wealth is no protection against this type of failure. Oftentimes, the wealth only makes the fall more newsworthy. Stories about people protected from future illness by their long term care planning just don’t make the news.

You can take steps today to protect your future quality of life. Click here to receive your free, no-obligation quote for long term care insurance.

Filed Under: Age related brain loss, Age related cognitive impairment, Denial, Elder fraud exploitation scams, Elephant in the Room Tagged With: age related cognitive decline, brain loss, Long-Term Care Planning, ltc planning, Mary Max, Peter Max

Are Assisted Living Facilities Keeping Up With Needs?

March 26, 2019 by Honey Leveen Leave a Comment

Caregiver with Elderly WomanAssisted living facilities and their residents don’t tire of blaming each other for sub-standard care.

An article in the New York Times reported the tragic and avoidable death of a 90-year-old resident, suffering from dementia. A resident of Brookdale Charleston Senior Living, she wandered outside — and not for the first time.

Nobody noticed her absence for seven hours. She was found in the pond behind the facility, dead from puncture marks to her ear, temple, jaw and cheeks.  Her pacemaker was discovered inside one of the alligators that lived in the pond.

The assisted living facility has already settled the family’s claim for wrongful death and is now facing an additional suit for emotional distress.

Sharing the Blame

I believe that the residents, their families and the facilities can share in the blame.

Undertrained Staff

Assisted living is not federally regulated. Nursing homes are. State enforcement and sanctions are often lax and not very stringent.

Many experts agree that much of the problem stems from inadequate staffing which I’ve blogged about in the past. Adequate funding will easily resolve these shortcomings. An simple recommendation, but more difficult to implement.

Assisted living started as a service for people who were more independent. Residents who need help with activities of daily living (ADLs). Some residents were experiencing early cognitive challenges. Just a generation later, assisted living often accepts people with far greater needs. Needs they may not be prepared to fully accommodate. I often see this, and it disturbs me.

The Facility’s Profit Motive

Many assisted living facilities are for-profit entities, earning handsome returns to their investors. I have some friends who manage the marketing at some of these organizations. They often tell me that they are pressured by management to fill as many apartments as they can.

Facilities cannot offer this needed care at an affordable price point that fills apartments and attain financial returns that please their investors. As the saying goes, “No one can serve two masters.”

The Resident’s Budget

The residents (or their families) pay for assisted living out of their own pockets, unlike nursing homes. Medicare or Medicaid do not contribute. They have a high appeal, as they emphasize independent living instead of intensive medical care.

Many residents are unable to afford the higher cost of fully trained and properly staffed facilities, so they let their budget determine the quality of care they receive.

People want to deny the almost certain fact that they might ever need long term care (LTC). When they inevitably do need LTC, it is common for them and their family to downplay the true extent of their needs.

So they choose the posh, upscale environment so many assisted living facilities have, instead of one that may be better-equipped to actually care for the resident.

What happens when the residents and their family realize that they’re not getting the care they need? They might experience the tragic consequences like the resident in the NYT article. They might move to another facility more appropriate for their escalating needs.

Decide to Plan

When planning for your future needs, wouldn’t it be nice to make your decisions based on quality of life and not settle for a sub-standard solution just because of your financial limitations?

Choose quality! Click here to receive your free, no-obligation quote for your own Long Term Care insurance policy.

Filed Under: Uncategorized Tagged With: assisted living, long-term care, long-term care insurannce, Long-Term Care Planning, LTCi, nursing facilities, nursing home care, Nursing Homes

What’s a CCRC?

January 2, 2019 by Honey Leveen 2 Comments

They’ve been around for over a century, starting first in Europe, mostly connected to religious organizations. The U.S. had about 7 CCRCs by the 1900s and they have continued to expand since then as both non-profit and for-profit operations. These days, the country has thousands of these facilities as their popularity continues to grow.

So what, exactly, is a CCRC? It’s a Continuing Care Retirement Community.

Here’s an academic definition I got from a recent insurance course I took:

CCRC’s (Continuing Care Retirement Communities) provide housing for senior citizens, an entire continuum of long-term care services, from part-time services performed by nonskilled staff to skilled nursing facility services.

Individuals start out in independent housing and naturally transition through assisted living to skilled nursing care, all while staying in the same community.

Yawn. This definition is so bland!

The “Retirement Home” for Today

Senior Couple Walking Along Coastal Path

For starters, I think the word “Retirement” in the title CCRC is now obsolete. Many people, including myself, will continue to work while living in one.

CCRCs are a place where people can enjoy a carefree, safe, luxurious, fun, stimulating, enriching – no matter what your interests are – lifestyle. Ours offers a strong sense of community. The CCRC is legally obligated to provide care for you through the end of life. And until that time, you’re living your best life possible! You also aging with grace, honesty and dignity.

The core offering of a CCRC is the ability for its residents to “age in place”. They provide an environment that promotes healthy, independent living which typically contributes to a happier and richer quality of life.

As medical needs increase, the appropriate level of care is available without creating radical, unsettling changes. Residents continue to be part of the community, maintaining friendships in familiar surroundings. This “all in one” solution provides great peace of mind to the seniors and also to their family members.

Jim and I are moving to a place called Shell Point Retirement Community (Fort Myers, FL) in February, 2018. That’s really soon! We contemplated this move for a while. Eventually, our attitudes towards CCRC’s shifted. We realized moving now, while we are still healthy, active and vital, was not only wise, but feasible.

Moving to Shell Point does not mean I’m retiring! I will continue to work, because I love my job. I can offer 30 years of wisdom and insight into long-term care protection, plus strong, client-centered ethics. My phone and email will will not change; I’ll continue to support you. When I’m not working, Jim and I will experience a truly fun lifestyle!

 

Filed Under: Denial, Helpful Information About LTC, Information About LTC Tagged With: CCRC's, Florida, Ft. Myers, long-term care, Long-Term Care Planning, Shell Point Retirement Community

The Special Case for Women and Alzheimer’s

December 19, 2018 by Honey Leveen Leave a Comment

Elderly Woman with AlzheimersAs I reported in October 2015, Alzheimer’s disease has a disproportionate impact on women. As we close out 2018, the statistics have not improved for us. In fact, two-thirds of America’s 6 million Alzheimer’s patients are women. It’s time for us to pay special attention to women and Alzheimer’s disease.

First, some quick facts from the Alzheimer’s Association and the Women and Alzheimers site:

  • Every 65 seconds, someone in the US develops Alzheimer’s
  • At age 65, a woman has a 1 in 6 chance of developing Alzheimer’s disease. Her risk for breast cancer is 1 in 11.
  • Also by age 65, a woman is twice as likely to develop Alzheimer’s than a man. By age 75, she is three times as likely.
  • More than 60% of unpaid Alzheimer’s caregivers (friends and family of Alzheimer patients) are women.

More Likely In Women

It seems like Alzheimer’s disease can affect any family at any time. So why is it more prevalent among women? Is it because women live longer than men? After all, the disease is more prevalent as we age. But we now know that the early symptoms of Alzheimer’s often begin 20 years before they are ever diagnosed.

Genetic risk factors are now getting more attention and focus. Back in the 1990s, scientists found that the presence of the ApoE4 gene was the primary culprit in the patient’s memory and other mental abilities. Further tests showed that this is more applicable to females. 

Heart disease and smoking are also considered contributors to the onset of Alzheimer’s disease. So is depression, which is more common in women than in men. And there is always the deepening discussion around hormonal changes that are so much more intense for women as they age.

Because women usually take on the responsibility of caregiving, there is some research that points to this extra emotional burden as a possible risk factor. 

Alzheimer’s patients and their families have a great amount of uncertainty and difficult decisions in their future. If you or someone you love is a woman, extra care should be taken to prepare for this disease.

Don’t get caught by surprise when the statistics are this powerful. You can begin by clicking here to receive your free, no-obligation quote for a long term care insurance policy.

Filed Under: Helpful Information About LTC, I'll Just Self-Insure, Information About LTC Tagged With: Alzheimer's Association, Alzheimer's Disease International, Alzheimer's Society, Alzheimers Disease, Long Term Care insurance, long-term care insurannce, Long-Term Care Planning, LTCi facts

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Phone: 713-988-4671
Fax: 281-829-7177

Email: honey@honeyleveen.com

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